Reaching out for the Truth; A Need Universal to Every Woman with Cancer: A Qualitative Content Analysis
Abstract
Background: One of the unmet needs in close association with the quality of life in women with breast cancer is the need for communication; therefore, the aim of the ongoing research is to elucidate the communication needs of patients with breast cancer. Methods: The present study is a Qualitative Content Analysis covering a cohort of people including 20 patients, physicians and nurses who were selected from amongst clients and staff of Shohadaye Tajrish and Taleghani hospitals affiliated to the Shahid Beheshti University of Medical Sciences. Purposive sampling was conducted and continued until data saturation. Semi-structured interviews were used for data collection. All the interviews were recorded and transcribed into typed text. Analysis of data was done simultaneously applying content analysis as outlined and developed by Graneheim & Lundman (2004) using the software MAXQDA. The data trustworthiness was evaluated using the criteria developed by Lincoln & Guba. Results: wo major categories were earned: "identifying sources of information", and "the necessity of a training package"; while the major category of "the desire to know" was explored as the need marked by the breast cancer patients during cancer treatment process. Conclusion: It appears essential to provide relevant information about the disease and how-to-care procedure as well as to identify the sources of information to meet the patients' needs for their participation in treatment decision-making and optimal management of life. Also, nurses and healthcare staff are required to work out the care provision programs by prioritizing the informational needs of the patients.National Cancer Registry Report 2007-8. Tehran, Iran: Ministry of Health, Deputy for Health Directory, CDC Cancer Office. 2009.
GLOBOCAN. 2012 [Available from: available at: http://globocan.iarc.fr/old/burden.asp?selection_pop=91364&Text-p=Iran%2C+Islamic+Republic+of&selection_cancer=3152&Text-c=Breast&pYear=3&type=0&window=1&submit=%C2%A0Execute (21Nov2015)
EGHTEDAR S, MOGHADASIAN S, EBRAHIMI H, HASANZAD AM, JASEMI M, ESMAEILI ZR. EVALUATION OF NURSING SUPPORTIVE CARE IN BREAST CANCER (2009).
Siegel R, Naishadham D, Jemal A. Cancer statistics, 2012. CA Cancer J Clin. 2012;62(1):10-29.
Hewitt M, Greenfield S, Stovall E. From cancer patient to cancer survivor: lost in transition: National Academies Press; 2005.
Ganz PA, Kwan L, Stanton AL, Bower JE, Belin TR. Physical and psychosocial recovery in the year after primary treatment of breast cancer. Journal of clinical oncology : official journal of the American Society of Clinical Oncology. 2011;29(9):1101-9.
Fleurence R, Selby J.V, Odom-Walker K, Hunt G, Meltzer D, Slutsky J. R, et al. How the Patient-Centered Outcomes Research Institute is engaging patients and others in shaping its research agenda. Health affairs (Project Hope). 2013;32(2):393-400.
Thompson GN, Chochinov HM, Wilson KG Prognostic acceptance and the well-being of patients receiving palliative care for cancer. Journal of clinical oncology : official journal of the American Society of Clinical Oncology. 2009;27:5757–62.
Basch E. Toward patient-centered drug development in oncology. The New England journal of medicine. 2013;369(5):397-400.
Kowalski C, Lee SY, Ansmann L, Wesselmann S, Pfaff H. Meeting patients' health information needs in breast cancer center hospitals - a multilevel analysis. BMC health services research. 2014;14:601.
Hammoudeh W, Hogan D, Giacaman R. From a Death Sentence to a Disrupted Life: Palestinian Women's Experiences and Coping With Breast Cancer. Qual Health Res. 2016.
Strójwąs K, Florkowski A, Jeżowska-Smorąg I, Gądek I, Zboralski K, Macander M, et al. [Emotional and psychosomatic disorder among female patients undergoing breast cancer diagnosis]. Polski merkuriusz lekarski: organ Polskiego Towarzystwa Lekarskiego. 2015;39(233):287-91.
Park BW, Hwang SY. Unmet needs of breast cancer patients relative to survival duration. Yonsei medical journal. 2012;53(1):118-25.
Hagerty RG, Butow PN, Ellis PM, Dimitry S, Tattersall MH. Communicating prognosis in cancer care: a systematic review of the literature. Annals of oncology : official journal of the European Society for Medical Oncology / ESMO. 2005;16(7):1005-53.
Protiere C, Moumjid N, Bouhnik AD, Le Corroller Soriano AG, Moatti JP. Heterogeneity of cancer patient information-seeking behaviors. Medical decision making : an international journal of the Society for Medical Decision Making. 2012;32(2):362-75.
Riahi A, Hariri N, Nooshinfard F. Health Information Needs of Immigrant Patients with Cancer in Iran. Journal of Modern Medical Information Science. 2015;1(3):11-20.
Health Care gov. Out-of-pocket costs 2013 [Available from: [Available from: https://www.healthcare.gov/glossary/O/oopcosts.html.
Thornewill J, Dowling AF, Cox BA, Esterhay RJ. Information infrastructure for consumer health: a health information exchange stakeholder study. American journal of preventive medicine. 2011;40(5 Suppl 2):S123-33.
Stacey D, Bennett C. L, Barry MJ. Decision aids for people facing health treatment or screening decisions. The Cochrane database of systematic reviews. 2011(10):Cd001431.
Caiata-Zufferey M, Abraham A, Sommerhalder K, Schulz PJ. Online health information seeking in the context of the medical consultation in Switzerland. Qual Health Res. 2010;20(8):1050-61.
Husson O, Mols F, van de Poll-Franse LV. The relation between information provision and health-related quality of life, anxiety and depression among cancer survivors: a systematic review. Annals of oncology : official journal of the European Society for Medical Oncology / ESMO. 2011;22(4):761-72.
Heidari Gorji MA, Bouzar Z, Haghshenas M, Kasaeeyan AA, Sadeghi MR, Ardebil MD. Quality of life and depression in caregivers of patients with breast cancer. BMC Res Notes. 2012;5:310.
Nowicki A, Krzemkowska E, Rhone P. Acceptance of Illness after Surgery in Patients with Breast Cancer in the Early Postoperative Period. Polski przeglad chirurgiczny. 2015;87(11):539-50.
Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24(2):105-12.
sajadian A, Hydary L, Mokhtari Hesari P. Common Breast Cancer Family Care Giving Problems. Iranian Journal of Breast Disease. 2015;8(2):7-14.
Ankem K. Factors influencing information needs among cancer patients: A meta-analysis. Library & information science research. 2006;28(1):7-23.
Feldman-Stewart D, Brundage MD, Nickel JC, MacKillop WJ. The information required by patients with early-stage prostate cancer in choosing their treatment. BJU international. 2001;87(3):218-23.
Hoekstra RA, Heins MJ, Korevaar JC. Health care needs of cancer survivors in general practice: a systematic review. BMC family practice. 2014;15:94.
Finney Rutten LJ, Meissner HI, Breen N, Vernon SW, Rimer BK. Factors associated with men's use of prostate-specific antigen screening: evidence from Health Information National Trends Survey. Preventive medicine. 2005;40(4):461-8.
Yun YH, Lee MK, Chang YJ, You CH, Kim S, Choi JS, et al. The life-sustaining treatments among cancer patients at end of life and the caregiver's experience and perspectives. Support Care Cancer. 2010;18(2):189-96.
Grunfeld E, Coyle D, Whelan T, Clinch J, Reyno L, Earle CC, et al. Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne. 2004;170(12):1795-801.
Sahay TB, Gray RE, Fitch M. A qualitative study of patient perspectives on colorectal cancer. Cancer practice. 2000;8(1):38-44.
Eakin EG, Strycker LA. Awareness and barriers to use of cancer support and information resources by HMO patients with breast, prostate, or colon cancer: patient and provider perspectives. Psycho-oncology. 2001;10(2):103-13.
Williams SA, Schreier AM. The role of education in managing fatigue, anxiety, and sleep disorders in women undergoing chemotherapy for breast cancer. Applied nursing research : ANR. 2005;18(3):138-47.
AJ N, Javadi A, Mahmood baboei M, rezaei F, Honardar A. The effect of education on common medical treatment on quality of life patients with breast cancer referring to oncology clinic of Kosar Hospital. Iranian Quarterly Journal of Breast Diseases. 2012;5(2):60-709[persian].
Ghavam-Nasiri M-R, Heshmati Nabavi F, Anvari K, Habashi Zadeh A, Moradi M, Neghabi G, et al. The effect of individual and group self-care education on quality of life in patients receiving chemotherapy: a randomized clinical trial. Iranian Journal of Medical Education. 2012;11(8):874-84.
Adams E, Boulton M, Rose P, Lund S, Richardson A, Wilson S, et al. Views of cancer care reviews in primary care: a qualitative study. The British journal of general practice : the journal of the Royal College of General Practitioners. 2011;61(585):173-82.
Abdollahzadeh F, Moradi N, Pakpour V, Rahmani A, Zamanzadeh V, Mohammadpoorasl A, et al. Un-met supportive care needs of Iranian breast cancer patients. Asian Pacific journal of cancer prevention : APJCP. 2014;15(9):3933-8.
Matsuyama RK, Kuhn LA, Molisani A, Wilson-Genderson MC. Cancer patients' information needs the first nine months after diagnosis. Patient Educ Couns. 2013;90(1):96-102.
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Issue | Vol 8 No 3 (2016) | |
Section | Original Articles | |
Keywords | ||
Breast cancer Qualitative study nursing Education |
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